Isn't he cute...he looks comfortable and to me he looks completely normal and healthy! Those hands are still by his face but at least they weren't covering his whole face.
30 weeks now, 10 weeks since we found out the horrible news of Max having t18 and 10 weeks until his due date... with time passing so quickly the fear of losing him is becoming so much more real everyday. The hard choices and planning for him are coming to a front; when we have to actually make those decisions about his life and passing.
I feel him moving so often I can now see him moving, which is pretty neat! Medically now we are going in once a week to monitor Max. To make sure that he is not in distress and is continuing to grow. So far the last two weeks he scored a 10 out of 10...this news is so great but at the same time it makes me realize how fragile his life is. With Trisomy 18 it is not uncommon for them to stop growing after 27 weeks or to go into distress... so we are living now week to week with the hope to make it to his birth date and meet him and God willing bring him home. I know he is a fighter and I know we can make it with continued prayer and faith. The day I get to introduce him to everyone who visits this site for Max is going to be a wonderful day!
But now I am trying to make it day to day... if i don't stay in constant prayer and walk with God its easy to drop off and break down, trust me I have had many of those days. I am loving carrying Maxson under my heart but with the reality of his life being so short also looming constantly on my heart its a very painful, lonely difficult road.
I do not regret our decision to carry Max full term, to end his life to me would have not been giving him the life that God intended and that he deserves! I feel more passionately than ever before about giving life and not ending it when it doesn't work out with our life or medically its not compatible with life; with which they deemed Max. And I think everyone who sees his pics above has to agree that Max's life and the words "not compatible with life" should NEVER be used together.
Since when is that fair medically or not to use those words with human life, I use those words with things like computers, some programs are not compatible with Macs but to use that with human life... So when someone is so sick with a disease that it ends in death then we should say they are not compatible with life. Sorry for my rant against this, but this is what they told us about Max this is what the world summed up Max's life to be...incompatible... in most of the medical world they do not support our decision to carry Max full term. Thank God we have a doctor that does. So you see they angered me and broke my heart with those words; I have the heart of a Mother because Max is my son no matter what is said.