12.09.2008

We're Home

This morning we left the hospital and went straight to the funeral home to see Max....it was pretty tough. We could not stay long because Trish was not feeling well, but are going to go back in tomorrow. I am looking forward to sleeping in our own bed tonight instead of a hospital recliner.

We are planning on having a "Celebration of Life" service on Saturday, 12/13 at 11am. This will be held at New Hope Church in Williston, ND. Details of everything still need to be worked out.

Please pray that this day will honor our son and bring glory to God, also that Trish is feeling better by Saturday, as she is hurting pretty bad physically and emotionally.

For Friends and Family that want to come from afar we will find you a place to rest your head, our home is open along with other friends and family members that live here.

In lieu of flowers we would rather you make a donation in Max's name to a nonprofit organization listed on the side bar such as, String of Pearls, Songs of Love, NILMDTS.org.

God Bless,
Dustin

ps - i will post more pictures tomorrow.

17 comments:

sheabetmc said...

Reading your blog this morning brings back the horrible memories of going to the funeral home to plan out our daughter's service...it was only four weeks ago...but that is something I don't want to go back and relive. I go back to the happy times of holding her...singing to her...and talking to her. I know the pain that Trish is feeling...so empty...stay strong in your faith. I love the way you guys are calling it a celebration of life...it is so fitting and exactly what you should do...CELEBRATE that He is perfect with our Lord.

Bethany
Hattiesburg, MS

Stacy D said...

So glad you are home, but I know that leaving the hospital without a baby in your arms is so, so hard. I'm glad you got a chance to see Max yesterday, adn that you'll get a chance to see him today. The Celebration of Life service sounds wonderful... I am so glad you'll be able to do that, and wish I didn't live so far away so that I could attend.

On a physical pain note, did the doctor give Trish something called a binder to wear? It's a big strecthy/velcro thing that goes around your abdomen... the compression really helps recovery from a c-section.

Continuing to pray for you all from Maryland...

Laurie in Ca. said...

I am praying for you both during this most heartbreaking time. I am so sorry for the pain you are going through. There are just no words of comfort that I can offer that would help right now. I am praying hard for both of you.

Laurie

Kristin said...

Still praying for you to have peace at this time. I'll be thinking of you on Saturday especially.

boltefamily said...

I am in tears as I type. I am so sorry. There are just no words that make any of this easier. We have lost two children shortly after birth and reading your words I vividly remember those thoughts and feelings. I will be praying or your sweet family as you celebrate your miracle with friends and family. I am sorry it hurts so much but I know God will comfort you.

Stephanie said...

Still Praying! I will continue to praying for both of you!

Jennifer Loppnow said...

Though I don't know you I found your blog thru another blog. I am so sorry for your loss, no words that I can say will ever ease your pain, but I hope that you can find solace in the fact that Max has eternal happiness. I send you my condolances from Wisconsin. Stay strong and love each other like never before. God Bless

Anonymous said...

Trisha and Dustin,
My heart breaks for you guys. I can't imagine what you're feeling. Thank you for being so brave for all those out there who've had troubles having children. You are a bright light!
Sadie

Anonymous said...

More prayers from Maryland. Your family will be in my thoughts and prayers. Max is in a wonderful place.

Beth

Kathleen said...

For the physical pain, please tell her walking and moving, although painful, will help the pain get better sooner.

For the emotional pain, I am praying for you. God has his arms wrapped around you, and He alone knows how much you hurt--and He alone can comfort your hearts, but He sends lots of human hugs your way to help.

Love & prayers

Mrs. Mother said...

I can remember holding up in the hospital pretty well, but when we got in the car on the way home, I broke down. My arms felt so empty. I had gone in to have a baby and felt like I should have gone home with one.

We had our baby cremated, so it was a few days before we went to pick her up. She is still with us, in a little urn surrounded by angels.

Maggie said...

Dear Dustin & Trish,
I found your blog through Stacy's blog. You will be on our daily rosary for your family. No words can comfort you other than 'we are so deeply sorry for your loss'. Tomorrow marks our 1 year anniversary for our Katherine who was also diagnosed with Trisomy 18 and is in heaven your Max. May we meet someday. God bless you.

Ivan & Maggie

Maggie said...

Dear Dustin & Trish,
I found your blog through Stacy's blog. You will be on our daily rosary for your family. No words can comfort you other than 'we are so deeply sorry for your loss'. Tomorrow marks our 1 year anniversary for our Katherine who was also diagnosed with Trisomy 18 and is in heaven your Max. May we meet someday. God bless you.

Ivan & Maggie

Laura said...

Thinking of you tonight. Praying for you and your aching heart. Wish I was closer and could be with you on Saturday. I know it will be a precious celebration of Max's sweet life.

Carla Burlando said...

p.s I forgot to say on my last comment that I absolutely love his little finger....and I love the fact that you have a picture of it! When my son was born I viewed all those things as imperfections and deformities not adorable little quirks. Looking back I wish I had not tried so hard to hide those things. His finger is so trade mark Trisomy 18 but is so beautiful ...it looks just like my sons hand did. So I guess even though I have no picture of my babies hands and haven't seen them in years....I love the fact that I just got a glimpse. Thankyou for sharing your beautiful boy.

Carla Burlando said...

I guess upon further investigation that my former comment did not actually post. oops. Your pictures a beautiful! I'll be praying for you saturday as you say goodbye again and celebrate the life of your son. The pain you are both feeling is so heavy and overwhelming right now...nothing I can say will make this road easier but there are many people lifting you up in prayer right now and celebrating Maxsons life with you..even from a far.

Amy Restad said...

I don't know you but I want you to know that I am praying for your strength. I am sure these days will be hard for you. Maxson is in a better place now.